I was diagnosed in 2004 . After 8 years of struggling to control this monster, coming close to seeing the end a few times too many my life was changed by a drug called Rituximab.
Im now 31 years old and thankfully have lived to see many positive advances made in the medical field when it comes to understanding and treating Vasculitis.
I owe my life to the wonderful team of doctors and nursers who have cared for me since I was diagnosed. I also owe a lot to friend and family who have supported me along the way. This illness changed me. I've made new friends, and lost some a long the way.
Ive cried, Ive laughed, Ive wished for death as an escape from extreme pain.
Ive learned more about my self mentally and physically than I ever could have dreamed of.
Now I live a "normal" life. I struggle with pain but with a crazy mixture of stubbornness and extreme luck I am able to do unimaginable things that often baffle my doctors. This is the part I wish to show. The wins and not the losses.
I hope you'll be patient with me as I expose a piece of my life that has moulded me into the human being I am today. My writing isn't perfect, my life is a medical mess but this is me. This is my beautiful fight with Vasculitis.
With love
Anne x